LHON Canada is a “Patient Support Group”, in the process of becoming a registered Charitable Organization. We support individuals and families affected by Leber’s Hereditary Optic Neuropathy from coast-to-coast, through a wide range of volunteers. Our community is diverse in age, gender, ethnicity, languages spoken, living situation, and income level. Like CNIB, we believe there “is life after vision loss”, and we work to ensure our community has the confidence, skills, and opportunity to fully participate in life.

With the support of our sponsors and donors, LHON Canada is investing in quality of life programming and sight-saving research. We offer peer mentorship programs and events for individuals and families affected by LHON, and lead efforts to educate and increase public awareness. We also support research efforts for this rare mitochondrial disease, in partnership with leading academic researchers in ground breaking areas of study: stem cell research, neuroprotective therapies, technological developments, pharmaceuticals, and gene therapies. All LHON Canada-assisted research supports the goal of understanding why LHON occurs, how it can be slowed or stopped, and how sight can be restored.

At the core of our Organization are a group of families who are personally affected by LHON and are passionate about supporting this community.

2019 Ottawa Inaugural Symposium Participants

A group of LHON members

2017 CNIB Night Steps Walk Event – LHON Canada Team