If you would like to be included in a database of people who will to be notified of significant events in the world of LHON, such as clinical trials for new treatment options, or to be notified as others located near you join the “LHON community”, please complete and submit this form.

By clicking “JOIN” you consent to participate in the LHON Canada Contact Registry and authorize use and disclosure of protected health information as detailed below. You also consent to receive correspondence from LHON Canada from time to time.

Privacy Information

The only risk of joining the LHON Canada Contact Registry is risk to your privacy, similar to that encountered through everyday use of the internet. Read the information before you decide to join.

Contact the LHON Canada at LHONContactRegistry@LHONCanada.ca if you have questions about the LHON Canada Contact Registry.