Thank you for visiting the LHON Canada website (

We are committed to respecting and safeguarding your privacy. This Privacy Policy details the types and uses of information collected from site visitors.
By visiting our website, you accept the Privacy Policy described here.

Collection and use of information

LHON Canada are the sole owner of the information collected on this site.

In general, you can visit our site without telling us who you are or revealing any personally identifiable information, unless you fill out one of our online forms.
When you fill out a form to receive website updates or publications, become a member, apply for a scholarship, bursary, give a donation, or send a question, we collect personally identifiable information (such as name, address, phone number and e-mail address). This information is entered into the LHON Canada database so we can process your request.

Potential volunteers/ambassadors who complete the online application form are assured of confidentiality. Your information is secure and will not be shared with any other organization. When you choose to submit a volunteer information/application form through our website, we may request the following information:
1. Contact information: first and last name, street address, city, province, postal code, telephone number, e-mail address and other contact information.
2. Personal information: information about your particular area of interest and your personal references.
This information is used to process your volunteer application.

Customs and Revenue Agency requirements relating to donations

In order to satisfy the requirements of the Canada Revenue Agency (CRA), we maintain records of all contributions to the LHON Canada. Personal information is private and confidential. Additionally, all information is stored in a secure location accessible only by authorized staff.

E-mail notices

If you subscribed to receive web updates or an e-newsletter, you will be placed on a list to receive periodic communications from the LHON Canada. You can unsubscribe at any time by sending an e-mail to

Visitor statistics

LHON Canada also collects generic information about visitors to its website. This information does not identify you personally. It includes your Internet domain name, the type of browser and operating system used, the web pages you access, and the portal from another website (referring website). We use this information for statistical analysis to have a record of the number of visitors, the pages visited most often, the technology used by the visitor, and the country of origin of visitors in order to help us make our site more useful to visitors. We may disclose this non-personal information to third parties such as sponsors, clients and/or use it for auditing purposes. This tracking system does not record personal information about individuals or link this information to any personal data collected.

Links to other websites

Links to third-party websites are provided solely for your information and convenience. LHON Canada is not responsible for the content or privacy policies on these other websites. The inclusion of any link does not mean that the LHON Canada endorses that website. We suggest that you carefully read the privacy policies of each site you visit.

Changes to this policy

Any updates or changes to the terms of this Privacy Policy will be posted here with the date of the newest version.

Contact us

If you have any concerns about our use of your information or about this Privacy Policy, please e-mail us at We will make every reasonable effort to address your concerns and remedy any problems you bring to our attention.

This Privacy Policy was last revised in June 2020