Estelle was a professional educator for over 30 years. She taught in various French Immersion school boards and has recently retired.
She graduated from University of Ottawa with a degree in Psychology and Sociology in addition to her degree in Education.
Throughout her teaching career, Estelle was involved in a variety of school committees and various philanthropic activities. She also has volunteered for CNIB, Habitat for Humanity, Achilles Canada, Canadian Cancer Society and for Federal and Provincial Election campaigns.
Her son Cavan was diagnosed with LHON with the 14484 mutation when he was 19 years old in 2009. When he became affected, it was a challenge to find information about LHON.
As a carrier and with a diagnosed son, it became important to seek out medical practitioners, support programs and services available for those affected by LHON in Canada – but few were available. This led to finding a clinical trial by a drug company at Notre Dame Hospital in Montreal where Cavan was accepted in September 2009.
It is as a result of this personal connection to LHON that Estelle has become a passionate advocate for this rare disease and why her leadership on our Board is so valued!